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Scottish Huntington’s Association is the only charity in Scotland exclusively dedicated to providing personalized, expert support needed for people living with Huntington’s disease—a genetic condition caused by an inherited faulty gene that gradually damages the brain.
People with Huntington’s can lose the ability to walk, talk, eat, drink and care for themselves. The dreadful toll on families is compounded further still because the disease is passed down from one generation to the next – anyone with a parent who has Huntington’s has a 50% risk of inheriting it too.
There is – at present – no way to slow or stop the progression of Huntington’s disease.
Funds raised for Scottish Huntington’s Association will help to make sure that families in your communities are supported by the specialist services they need. Scottish Huntington’s Association is here for people with the disease, their loved ones and carers, and children and young people, including young carers, and those at risk of developing Huntington’s.
Your support will help to reduce unnecessary hospital admissions, support carers and other loved ones, and alleviate wellbeing risks to children and young people through the charity’s nationwide network of HD Specialists and Specialist Youth Advisors. Donations will also help to lower household poverty through the work of its Financial Wellbeing Service.
Sarah Winckless MBE
Sarah Winckless MBE is an Olympic bronze medallist winning rower (2004), a double world champion (2005, 2006), and advocate for Huntington’s disease families.
Since retiring from rowing in 2009, Sarah has continued to contribute to sport and inspire leadership at the highest levels including as Chair of British Olympic Association Athletes Commission (2010) and Non-Executive Director with UK Anti-Doping, the national organisation dedicated to the protection and promotion of clean sport. She led Team GB to the Youth Olympic Games in 2014 and Team England to the Commonwealth Games 2018 in Australia. Already a Henley Royal Regatta Steward,
Sarah made history in 2021 as the first woman umpire in the 166-years of the Men’s Oxford-Cambridge University Boat Race. She has been Patron of Scottish Huntington’s Association since 2009 and through her advocacy and campaigning has become a prominent figure amongst the global Huntington’s community.
Dame Katherine Grainger DBE
Katherine Grainger is one of Britain’s most successful female athletes and the only female to have won Olympic medals from 5 consecutive Olympic Games. Originally from Glasgow, Katherine studied at Edinburgh University, where she took up the sport in 1993.
Alongside her rowing career, Katherine attained an honours LLB, an MPhil in Law and a PhD in the sentencing of homicide. Katherine is currently the Chancellor of the University of Glasgow.
Outside of academia, Katherine has spent the past 8 years investing her considerable talents into the role of Chair at UK Sport, the UK’s high performance agency where she has successfully built on the commitment to excellence that she witnessed as an athlete.
As this tenure comes to a close, Katherine was recently announced as the first female Chair of the British Olympic Association, a post she will take up in 2025.
Katherine makes regular appearances as a BBC pundit for Olympic and World Rowing Championships, is a Board Member of the Youth Sport Trust and is a Patron of Henley Women’s Regatta, the National Coastwatch and Netball Scotland.
Sarah Davidson
Chair of Carnegie UK Trust
Guest Chair
Jackie Bird
Journalist, Broadcaster and Writer
Jackie Bird is one of Scotland’s best known and most experienced broadcast journalists. After an early career in print journalism she presented the BBC’s flagship nightly news, Reporting Scotland, for thirty years, dealing with major events at home and abroad.
As a broadcasting all-rounder Jackie has been a regular presenter for key events – from election nights to light entertainment Hogmanay shows. She has been the face of Scotland’s Children in Need telethon for 25 years. Jackie also writes and produces documentaries on TV and on radio, which have included a six-part sitcom.
Jackie is passionate about history and has made many history programmes including a major series on the female suffrage movement in Scotland and on the Korean war.
She is President of the National Trust for Scotland and hosts the charity’s award-winning “Love Scotland” podcast series.
