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Scottish Huntington’s Association is the only charity in Scotland exclusively dedicated to providing personalized, expert support needed for people living with Huntington’s disease—a genetic condition caused by an inherited faulty gene that gradually damages the brain.
People with Huntington’s can lose the ability to walk, talk, eat, drink and care for themselves. The dreadful toll on families is compounded further still because the disease is passed down from one generation to the next – anyone with a parent who has Huntington’s has a 50% risk of inheriting it too.
There is – at present – no way to slow or stop the progression of Huntington’s disease.
Funds raised for Scottish Huntington’s Association will help to make sure that families in your communities are supported by the specialist services they need. Scottish Huntington’s Association is here for people with the disease, their loved ones and carers, and children and young people, including young carers, and those at risk of developing Huntington’s.
Your support will help to reduce unnecessary hospital admissions, support carers and other loved ones, and alleviate wellbeing risks to children and young people through the charity’s nationwide network of HD Specialists and Specialist Youth Advisors. Donations will also help to lower household poverty through the work of its Financial Wellbeing Service.
Sarah Winckless MBE
Sarah Winckless MBE is an Olympic bronze medallist winning rower (2004), a double world champion (2005, 2006), and advocate for Huntington’s disease families.
Since retiring from rowing in 2009, Sarah has continued to contribute to sport and inspire leadership at the highest levels including as Chair of British Olympic Association Athletes Commission (2010) and Non-Executive Director with UK Anti-Doping, the national organisation dedicated to the protection and promotion of clean sport. She led Team GB to the Youth Olympic Games in 2014 and Team England to the Commonwealth Games 2018 in Australia. Already a Henley Royal Regatta Steward,
Sarah made history in 2021 as the first woman umpire in the 166-years of the Men’s Oxford-Cambridge University Boat Race. She has been Patron of Scottish Huntington’s Association since 2009 and through her advocacy and campaigning has become a prominent figure amongst the global Huntington’s community.
